Wednesday, December 28, 2011

D is for DAMN!

Docetaxel is my latest drug in the cocktail elixir of round 4. It is the only drip for the next three rounds. I had been prepared for the many side effects of this one but thought I would hold off judgement as I had gone through the first ones without many side effects. Chemo takes place on a Wednesday and then within 24-36 hours after the fact I was to get an injection of Neulasta. It is meant to help increase your immune system but can also cause muscle and joint pain.

So in I go for chemo with my "tree root" vein which they are unable to use. They heat up my hand with a warm blanket and then go searching for another vein source. Nurse K thinks she has one, but doesn't get in...then tries again on the underside of my arm...ok THAT hurts...but does not succeed. She calls over Nurse W <as they only poke you 2x before getting someone else...they are kind like that>. Nurse W searches all over, heats me up again and then goes in...nope...sigh..but the 4th time is a charm and we're off. Sometimes this drug can cause an allergic reaction when then inject it so they sit with you for a bit to ensure everything is all good. And for once I am doing well..no coughing fits, no numbness in fingers and toes all good. I sit quietly observing all around me while my husband is up observing a gentlemen next to us get injected through a port. Sick husband!

After an hour they do the flush and off I go. Well that was nothing! The next morning I wake up a little tired but I am pleased that I am not hitting the 1/2 hour wall like the first three rounds. I am a bit tired but I can push through this one. Then comes the injection, you have the option of having VON come into do this but my husband is a trained professional so I gave him the benefit of the doubt and let him inject me. I have never used any type of illegal drug in my life and now I am being injected with a $2000 legal drug...kind of seems off..maybe I should have tried some cheaper stuff first..but I am a girl with expensive taste. The needle was like a skin scratch and I felt some fluid move but within a minute you would never have known it was done. <Injected into my side stomach...lots of fat layers to hide the pain> Unlike my arm, which now looked like a pin cushion full of bruises and injection sites. Good job hunny!

I did start taking the ibuprofen and got the prescription done up for the Tylenol 3s but wasn't sure I needed them as this chemo seemed to be going well. Then I woke up the next morning and felt like I was getting the flu. Every muscle in my body felt like it was seizing and it felt like my cough was coming back. Although it was hard to tell as the acid reflux came back with a vengeance during the night and felt like it had burned my throat. Maybe I was getting the flu...I took a shower and massaged my muscles and felt good..I then got out of the shower and all things seized again..oh..ooh..did I mention this was Christmas Eve.

I went out and did some errands which turned out to be faster than anticipated, given the day, and came home. I started feeling really tired and decided to lay down..the only problem with this was that everywhere ached, so after an hour of fighting with positions I got up, took a bath and wrapped some presents. I tried to have a drink but it burnt my throat even more and I just gave up. Damn it ...it was Christmas and I was going to suck it up. We went out a friends house but after an hour of trying to move around to get comfortable and drinking water I thought..maybe we should go home...I walked through the door and went to bed with a hot water bottle. Not that this did any good as I flip flopped the whole night trying to find one place that was comfortable, only to discover there were none to be found. Although my husband did roll over to me and said..I'm a little cold...do you think you could have a hot flash right about now...seriously? Do you want the Christmas tree shoved up your ass? Actually I was a little chilled too but did not wish for the hot flashes.

The next day between the pill popping, a couple of baths massaging the pain, the acid reflux continuation and the hot flashes I was thinking MERRY F%^KING CHRISTMAS! I did manage to move around the house as small step walking seem to help..avoid stairs though..they hurt...got dressed..occasionally found myself staring at walls ...I made it to Christmas dinner. I was lucky as I only had to show up...not that I was much fun...two large hot flashes and tunnel vision later, my taste bud seem to have gone out of whack as well...I was only too happy to get home to bed....I think I got about an hours sleep as I had constant hot flashes that lasted almost 3 hours.

At one point I thought I should take my temperature but decided that would not get an accurate reading..then I thought..should I go to emergency as this is cannot be normal...but did I ...no...I laid there soaking through my pajamas, occasionally getting up to walk around but got cold...and went back to bed. The next two days I laid as low as I could. I was ready to have a full mental breakdown but kept thinking..this has to change at some point right? It can't last for three weeks..can it? I was due to go to a family function but decided this was not my best decision and family understands.

Also on day 5-6 my taste buds flared up to 3x their normal size and everything I ate had no flavour and tasted like sawdust...oh did I mention the insane diarrhea..yup...keeps getting better and better. I am one attractive lady!

On day 6 I decided I should get a massage. Someone rubbing me with heat and oil for an hour was a good thing. I was lucky to get in on such short notice and I took it as a good sign. The moment I got on the table and the large heating pad was put on was the first moment of relief I felt in 6 days. I have not gone for a massage since before my surgery as I wasn't sure how to approach the situation, but being in constant pain for 6 days makes you get over any inhibitions or embarrassment you have. I just flat out told L that I was going to take off my wig, I am in chemo, I only have one breast and please help me. L was great and she wasn't phased at all. She got the extra big heating pad, extra pillows to help prop me up so I laid flat and we laughed and giggled for an hour about our crazy dog stories. <She wins those ones>, Afterwards I got up and for the first time in many days I walked without pain. Why had I waited so long? How long will this last? When is the next available appointment?

And the good news is that I have found McDonald's banana-strawberry fruit smoothies are a relief to my mouth. I don't care if they have sugar in them...being able to "eat" something with flavour overrides this. I will try to make another massage appointment with in the next two days as L is booked, need to buy smoothie supplies...oh and did I mention that a hemroid has decided to flare up and the sides of my mouth have cracked...fun times....I think I should buy a pharamcy as I seem to be there often enough!

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